Tuesday, 25 March 2014

Marks and Spencer?

Writing about my MS for the Cake in Cilcain post, I remembered what it was like to hear my diagnosis.  Not all that unexpected for me, what else could it have been?  But Lisa really wasn't expecting it, she was waiting to hear that I just needed to take a tablet or something, and I would be okay.  She'd been trying to give up smoking, but as soon as she heard, she wanted cigarettes.  Pub was closer than the shop, so she went the few doors up the street to the Standard of England.  She wasn't looking very happy and the barmaid asked her what was up.  She said that we'd just found out what was wrong with me.  MS.  

Wot?  Marks and Spencer?

Lisa was close to punching her, but didn't.  And she can't remember if she said or just thought her incredibly thick.  She couldn't tell me that first day, but when she did, a day or so later, we laughed so much.  See what happens if you wear their underwear and eat their sandwiches?  

Sunday, 23 March 2014

Eat Cake in Cilcain for the MS Trust

The Cilcain community cafe will be raising funds for the MS Trust on Saturday 29th March, 2-5pm.  Cilcain is in Flintshire, North Wales.  Not that far from Chester.

More than 100,000 people in the UK have MS

57 people every week are diagnosed with MS
The most common symptoms are invisible: fatigue, pain and slowed thinking
MS is the most common neurological condition affecting young people
People are usually diagnosed with MS in their 20s and 30s
MS affects more than twice as many women than men
MS is not a fatal condition
Most people diagnosed with MS will not need to use a wheelchair on a regular basis
At present, there is no cure for MS. But there are many ways that symptoms can be treated.

My parents are running this, with help from others in Cilcain.  A good excuse to eat cake.  Really good cake too.  You could always go for a walk up Moel Famau first to work up an appetite.  If you do, please remember there are lots of lambs about, so your dog must be on a lead at all times.

I copied the info about MS from my Dad's facebook.  I'll just have a look down the list.  Yep, fatigue.  I don't remember what it feels like to have lots of energy.  Pain, not constant for me, but as I type, I have pain in the right side of my neck, not too bad, but maybe time for more meds.  Slowed thinking.  Oh yes.  Slow to recall words, names of things.  I forget stuff.  It's hard doing more than very simple things.  Following a recipe is tricky. Just too complex.  Do this, then this, then this while this.  Nope!  That is just not happening!  Oh well.  What's next on the list.  Yep, I was diagnosed when I was 30.  Was I 30?  Or 31?  Anyway.  I'd got to a reasonable level of fitness, decided what I wanted to do with my life.  Been to the open evening and got the forms for psyche nursing.  Not fatal that list says.  Lisa was floored by my diagnosis because she had a good friend die very young from it.  So her immediate thought was that I would die too.  The wheelchair thing.  I could do with one  now.  It's very limiting not having one.  More for others than for me, I know people want to take me places.  Though I'm not sure how well I'll feel with places rushing past me.  Still.  I'll find out soon enough.  No cure, but symptoms can be treated huh.  I've tried a few drugs for alertness and not found them helpful for me. Baclofen for muscle spasm, that's a good one.  Pain would be worse without it.

Still.  Cake is good!  So if you are in the area next weekend, do come and have a cup of tea and a cake.  

Dad, do send me any links I need to add to this!

https://www.facebook.com/pages/Holy-Socks/211010952323300  Holy Socks will be available!

Favourite Luxury Sports Watch from The Watch Gallery

So I saw this competition to win-100-asos-voucher-with-watch-gallery.html and thought I would have a go at it.  Maybe I would find a nice watch for Lisa's 40th birthday coming up in June.  I missed that word luxury.  That means crazily expensive.  I did find a nice watch, this Hublot Big Bang.

Rubber strap, so it wouldn't irritate her skin, looks good doesn't it?  Views of it from various angles here - thewatchgallery. I really liked it, and showed it to Lisa. She really liked it too, she's not exactly girly, so cute and shiny isn't her thing. Not sure she would wear any watch for weight training, but it would look good afterwards, when showered and fully dressed.

Then I noticed the price. £10,200.  Sorry Lisa!  You aren't getting that for your birthday!  

Sunday, 2 March 2014

February Wins

Tiny £2 win - download of Alph and Betty
Little bottle of Schwarzkopf Got2b Oil-licious Styling Oil with Argan Oil
Can't remember brand, but some sort of makeup primer
Signed Ken Hom cookbook Tesco twitter giveaway
You know all about the gorgeous friendship bracelet, it arrived so quickly too, notified of the win on Saturday, arrived on Tuesday.  

And my daughter has won a 3 month paid internship.  Good for her!  For a marketing company for ethical brands.